Program

3nd International Conference V4-CF

18-20.11.2021 r.

Cracow, Poland

Preliminary program

Thursday 18.11.2021; Cracow

13.00	Check in at the hotel
19.00	Welcome reception

Friday 19.11.2021, Cracow

9.00 – 10.30	Opening of the conference Prof. Tomasz Grodzicki, Prof. Dorota Sands, Polish Ministry of Health, Paweł Wójtowicz, Dr Katarina Stepankova, Noordhoek Jacqueline, Yann Le Cam, Mayor of the City of Krakow Introduction of novel therapies – country perspective Prof. Pavel Dřevínek – Czech Republic
10.30 – 10.50	Coffee break
10.50 – 11.15	Presentation of Poland Prof. Dorota Sands, Przemysław Marszalek – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
11.15 – 11.40	Presentation of Slovakia Dr Hríbiková, Dr Feketeová, Dr Štěpánková, Štepánek – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
11.40 – 12.05	Presentation of Czech Republic Prof. Dřevínek, Arellanesová, Zábranská – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
12.05 – 12.30	Presentation of Hungary Dr Halász Adrien, Marsal Géza – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
12.30 – 13.00	Questions & Answers
13.00 – 14.30	Lunch
14.30 – 15.00	Chest physiotherapy for CF patients Hugues Gauchez – France
15.00 – 15.25	Presentation of Ukraine Dr Makukh, Voloshyna – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
15.25 – 15.50	Presentation of Latvia Belinska Alla, Dr Elina Aleksejeva – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
15.50 – 16.15	Presentation of Bulgaria Prof. Stoyanova Gerguana Petrova, Yankov – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
16.15 – 16.40	Presentation of Russia Miasnikova Irina – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
16.40 – 17.00	CF Hero Sponsored presentation
17.00 – 17.20	Questions & Answers

Saturday 20.11.2021 r. Cracow

9.00 – 9.40	Opening second day of the conference New era of cystic fibrosis – global perspective Prof. Dorota Sands
9.40 – 10.00	Role of patient´s organisations in the process of access to new therapies for CF Noordhoek Jacqueline, CF Europe
10.00 – 10.20	Lung transplantation in patients with CF Prof. Marek Ochman – Poland
10.20 – 10.40	Damage to the liver and bile ducts in CF with regard to liver and pancreas transplantation Dr Sabina Więcek – Poland
10.40 – 11.00	Questions & Answers
11.00 – 11.20	Coffee break
11.20 – 11.50	Genetics of Cystic Fibrosis update 2021 Prof. Milan Macek – Czech Republic
11.50 – 12.10	Genetics of CF in Poland Dr Agnieszka Sobczyńska, Mgr Karolina Kowalczyk – Poland
12.10 – 12.30	Preconception genetic screening of cystic fibrosis and other single gene disorders. Dr Cernakova Iveta, Petrovic R. – Slovakia
12.30 – 12.50	NBS programme and diagnostic process in Ukraine Dr Halyna Makukh – Ukraine
12.50 – 13.10	CF in Europe: The future Dr Andreas Jung, ECFSPR
13.10 – 13.30	Cystic fibrosis registry in Poland – disease and data management Dr Łukasz Woźniacki – Poland
13.30 – 13.50	Questions & Answers
13:50 – 15:20	Lunch
15.20 – 15.40	Adult patients – current situation in Poland Dr Wojciech Skorupa – Polska
15.40 – 16.00	Pancreatic Enzyme Therapy in CF Patients “old and new” Prof. Halina Woś – Poland
16.00 – 16.20	Physiotherapy in cystic fibrosis Mgr Natalia Jeneralska – Poland
16.20 – 16.40	Our experiences with Simeox for CF Dr Eva Bérešová – Słovakia
16.40 – 17.00	Respilon Sponsored presentation
17.00 – 17.20	Questions & Answers
17.00 – 17.40	Sumary – Paweł Wójtowicz, Dr Katarina Stepankova

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