Program
3nd International Conference V4-CF
18-20.11.2021 r.
Cracow, Poland
Preliminary program
Thursday 18.11.2021; Cracow
13.00 | Check in at the hotel |
19.00 | Welcome reception |
Friday 19.11.2021, Cracow
9.00 – 10.30 | Opening of the conference Prof. Tomasz Grodzicki, Prof. Dorota Sands, Polish Ministry of Health, Paweł Wójtowicz, Dr Katarina Stepankova, Noordhoek Jacqueline, Yann Le Cam, Mayor of the City of Krakow Introduction of novel therapies – country perspective Prof. Pavel Dřevínek – Czech Republic |
10.30 – 10.50 | Coffee break |
10.50 – 11.15 | Presentation of Poland Prof. Dorota Sands, Przemysław Marszalek – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
11.15 – 11.40 | Presentation of Slovakia Dr Hríbiková, Dr Feketeová, Dr Štěpánková, Štepánek – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
11.40 – 12.05 | Presentation of Czech Republic Prof. Dřevínek, Arellanesová, Zábranská – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
12.05 – 12.30 | Presentation of Hungary Dr Halász Adrien, Marsal Géza – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
12.30 – 13.00 | Questions & Answers |
13.00 – 14.30 | Lunch |
14.30 – 15.00 | Chest physiotherapy for CF patients Hugues Gauchez – France |
15.00 – 15.25 | Presentation of Ukraine Dr Makukh, Voloshyna – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
15.25 – 15.50 | Presentation of Latvia Belinska Alla, Dr Elina Aleksejeva – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
15.50 – 16.15 | Presentation of Bulgaria Prof. Stoyanova Gerguana Petrova, Yankov – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
16.15 – 16.40 | Presentation of Russia Miasnikova Irina – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF |
16.40 – 17.00 | CF Hero Sponsored presentation |
17.00 – 17.20 | Questions & Answers |
Saturday 20.11.2021 r. Cracow