Program

Program

3nd International Conference V4-CF

18-20.11.2021 r.

Cracow, Poland

Preliminary program

Thursday 18.11.2021; Cracow

13.00Check in at the hotel
19.00Welcome reception

Friday 19.11.2021, Cracow

9.00 – 10.30Opening of the conference Prof. Tomasz Grodzicki, Prof. Dorota Sands, Polish Ministry of Health, Paweł Wójtowicz, Dr Katarina Stepankova, Noordhoek Jacqueline, Yann Le Cam, Mayor of the City of Krakow
Introduction of novel therapies – country perspective Prof. Pavel Dřevínek – Czech Republic
10.30 – 10.50Coffee break
10.50 – 11.15Presentation of Poland Prof. Dorota Sands, Przemysław Marszalek – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
11.15 – 11.40Presentation of Slovakia Dr Hríbiková, Dr Feketeová, Dr Štěpánková, Štepánek – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
11.40 – 12.05Presentation of Czech Republic Prof. Dřevínek, Arellanesová, Zábranská – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
12.05 – 12.30Presentation of Hungary Dr Halász Adrien, Marsal Géza – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
12.30 – 13.00Questions & Answers
13.00 – 14.30Lunch
14.30 – 15.00Chest physiotherapy for CF patients Hugues Gauchez – France
15.00 – 15.25Presentation of Ukraine Dr Makukh, Voloshyna – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
15.25 – 15.50Presentation of Latvia Belinska Alla, Dr Elina Aleksejeva – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
15.50 – 16.15Presentation of Bulgaria Prof. Stoyanova Gerguana Petrova, Yankov – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
16.15 – 16.40Presentation of Russia Miasnikova Irina – Access to novel CF therapies (CFTR modulators,….) – Access to standard medicines and therapies – National CF Registry exist in your country – National standards of CF care – National programms for Rare diseases – Problems in CF care – Future of CF
16.40 – 17.00CF Hero Sponsored presentation
17.00 – 17.20Questions & Answers

Saturday 20.11.2021 r. Cracow

9.00 – 9.40Opening second day of the conference New era of cystic fibrosis – global perspective Prof. Dorota Sands
9.40 – 10.00Role of patient´s organisations in the process of access to new therapies for CF Noordhoek Jacqueline, CF Europe
10.00 – 10.20Lung transplantation in patients with CF Prof. Marek Ochman – Poland
10.20 – 10.40Damage to the liver and bile ducts in CF with regard to liver and pancreas transplantation Dr Sabina Więcek – Poland
10.40 – 11.00Questions & Answers
11.00 – 11.20Coffee break
11.20 – 11.50Genetics of Cystic Fibrosis update 2021 Prof. Milan Macek – Czech Republic
11.50 – 12.10Genetics of CF in Poland Dr Agnieszka Sobczyńska, Mgr Karolina Kowalczyk – Poland
12.10 – 12.30Preconception genetic screening of cystic fibrosis and other single gene disorders. Dr Cernakova Iveta, Petrovic R. – Slovakia
12.30 – 12.50NBS programme and diagnostic process in Ukraine Dr Halyna Makukh – Ukraine
12.50 – 13.10CF in Europe: The future Dr Andreas Jung, ECFSPR
13.10 – 13.30Cystic fibrosis registry in Poland – disease and data management Dr Łukasz Woźniacki – Poland
13.30 – 13.50Questions & Answers
13:50 – 15:20Lunch
15.20 – 15.40Adult patients – current situation in Poland Dr Wojciech Skorupa – Polska
15.40 – 16.00Pancreatic Enzyme Therapy in CF Patients “old and new” Prof. Halina Woś – Poland

16.00 – 16.20

Physiotherapy in cystic fibrosis Mgr Natalia Jeneralska – Poland
16.20 – 16.40Our experiences with Simeox for CF Dr Eva Bérešová – Słovakia
16.40 – 17.00Respilon Sponsored presentation
17.00 – 17.20Questions & Answers
17.00 – 17.40Sumary – Paweł Wójtowicz, Dr Katarina Stepankova

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