Program

4th International Conference V4 -CF

Kraków – Wieliczka

CONFERENCE PROGRAMME

Thursday, November 21, 2024 Krakow

Hotel Stradom House, St. Stradomska 12-14

15.00	Registration & Checking		Registration & Checking in Registration
19.00	Welcome Reception		Welcome Reception

Friday, November 22, 2024 Wieliczka

Wieliczka Salt Mine, St. Daniłowicza 10

Twinning day

9.30	Transfer to Wieliczka
10.30 – 12.00	Visiting the Salt Mine in Wieliczka
12.00 – 12.30	Opening speech Prof. Tomasz Grodzicki, Prof. Dorota Sands, Paweł Wójtowicz, Katarina Stepankova, MD, Minister Zdrowia, CFE, Eurordis
12.30 – 13.00	Twinning project Prof. Pavel Drevinek, MD, Claire Francis, ECFS/CFE
13.00 – 13.15	Poland Prof. Dorota Sands + Przemysław Marszalek
13.15 – 13.30	Czech Republic Prof. Pavel Dřevínek, MD + Simona Zábranská, Adela Odrihocka
13.30 – 13.45	Hungary Parniczky Andrea, MD + Géza Marsal
13.45 – 14.05	Slovakia / Spain / United Kingdom Dr Nina Bližnáková, Dr Zuzana Rennerová + Dr Silvia Gartner, Ellie Davies
14.05 – 14.25	Discussion
14.30 – 15.15	Lunch
15.15 – 15.40	Estonia / United Kingdom Dr. Silvi Plado, / Dr. Maire Vasar + Prof. Julian Forton  MRCPCH PhD/ Dr. Jamie Duckers, MD Madli Kadajas + Ellie Davies
15.40 – 15.55	Latvia / France Alla Belinska
15.55 – 16.10	Lithuania “CF care in Lithuania from the perspective of healthcare professionals” Valdone Miseviciene, MD, PhD „CF care in Lithuania from the perspective of patients/parents” Lijana Kazaulskiene
16.10 – 16.30	Bulgaria / Netherlands Guerguana Petrova, MD + Hettie M. Janssens MD, Tsvetelina Ivanova
16.30 – 16.40	Discussion
16.40 – 16.50	Ukraine / France Larysa Voloshyna
16.50 – 17.00	Ivano Frankivsk / Marseille Monika Makyan MD, Fomenko Nadya MD
17.00 – 17.10	Kyiv / Petah Tikva Natalyia Samonenko MD, Ostapyshena Yulia MD + prof.Dario Prais MD prof. Meir Mei-Zahav MD
17.10 – 17.20	Lviv / Brompton Lyiudmyla Bober MD, Halyna Makukh Ph.D. + John King, MD
17.20 – 17.30	Vinitsya / Montpellier Natalyia Sinchuk, MD + Raphael Chiron, MD
17.30 – 17.40	Zaporizhya / Jerusalem Tanya Okul MD, Elena Folumenova MD + prof. Malena Cohen MD
17.40 – 18.00	Discussion
18.00 – 18.20	Departure from the Salt Mine
18.30	Dinner
21.00	Return to Krakow

Saturday, November 23, 2024 Cracow

City Hall of Krakow, pl. Wszystkich Świętych 3-4

Expert day

9.00 – 9.20	Opening speech
9.20 – 10.00	“Cystic fibrosis in a new era – CF monitoring” Prof. Dorota Sands, MD – Poland
10.00 – 10.20	“The role of patient organisations in the process of access to new therapies in cystic fibrosis” – Thierry Nouvel, CFE – online
10.20 – 10.40	“New directions in genetic research” Prof. Milan Macek Jr. MD, DrSc – Czech Republic
10.40 – 11.00	Q & A
11.00 – 11.20	Coffee break
11.20 – 11.40	“What information does genetic testing in cystic fibrosis provide us?” Kamila Czerska, MD, PhD ,Karolina Kowalczyk, MSc,- Poland
11.40 – 12.00	„Importancy of CF Centers with multidisciplinary CF teams in CF care” Poplawska Krystyna, MD, Germany
12.00 – 12.20	„European CF Patient´s Registry” Egil Bakkeheim, MD- Norway, ECFSPR
12.20 – 12.40	“The gastrointestinal system in the course of cystic fibrosis in the era of modulator treatment” Sabina Więcek, MD, PhD, – Poland
12.40 – 13.00	„Nutrition in the era of modulator treatment” Monika Mielus, MD – Poland – online
13.00 – 13.20	„A global effort to assess emotional well-being in young children with CF” Sonia Graziano – Italy
13.20 – 13.40	Q & A
13.40 – 15.10	Lunch
15.10 – 15.40	“Adult patients – the current situation in Poland” Wojciech Skorupa, MD – Poland
15.40 – 16.00	„Pregnancy and breastfeeding in CF” Prof. Malena Cohen, Israel
16.00 – 16.20	“Physiotherapy in cystic fibrosis” Natalia Jeneralska, MSc – Poland
16.20 – 16.40	„Health literacy of the chronic and CF patients and its impact on the health outcomes“ Mgr. Peter Kolarčik, PhD – Slovakia
16.40 – 17.00	Q & A
17.00 – 17.20	Closing speech Paweł Wójtowicz, Katarina Stepankova, MD
19.30	Dinner

The non-substantive program will not be financed from the funds provided by the member companies of the POLMED Chamber, MedTech Polska, and INFARMA.

Download program in PDF file